We can build on the Children's Health Insurance Program enacted in 1997 -- by passing the bipartisan legislation introduced last year, to enable pare… - Ted Kennedy

When Patrick developed it, we brought in medical experts at least once a year and sometimes twice a year, from around the country. They came in at nighttime. They would examine Patrick and talk with him, and then they would go off by themselves and have a meeting at a hotel, and then they would come over in the morning and brief me on their understanding of his condition, and their recommendations. Since he was chronic, there was a whole series of different types of medications that they would talk about, and the advantages and disadvantages of each. That continued all the way up through his graduation from Andover, even in his last year at Andover. The last meeting was at the Parker House in Boston. He had some time off and my son [Edward M. Kennedy, Jr.] Teddy was going to take some time off, so the three of us were going to go away, and the doctor said, "Don’t go further than 35 or 40 minutes from a hospital." So we went down to Key Biscayne, because we were 35 minutes away from the hospitals down in Miami. So, it was a major factor and a force as he was growing.

Madam President, I yield myself 4 minutes. Just to review for the membership exactly where we are, we will commence voting at 10 o'clock and the first vote will be on a school choice amendment by Senator Coats. Our position is in opposition to this. We addressed this issue in 1990. We had a good debate on this at the end of last week. We believe that scarce resources should not be utilized for private schools but should be focused on the public schools of this country. That position is supported overwhelmingly by the American people. Second, we will have a Grassley amendment to protect the parental role in surveys administered to children. I thank the Senator from Iowa. We support that amendment. We think it strengthens the Gephardt language which exists in current law.

Nothing I'm enduring now can compare to hearing that my children were seriously ill. In 1973, when I was first fighting in the Senate for universal coverage, we learned that my 12-year-old son Teddy had bone cancer. He had to have his right leg amputated above the knee. Even then, the pathology report showed that some of the cancer cells were very aggressive. There were only a few long-shot options to stop it from spreading further. I decided his best chance for survival was a clinical trial involving massive doses of chemotherapy. Every three weeks, at Children's Hospital Boston, he had to lie still for six hours while the fluid dripped into his arm. I remember watching and praying for him, all the while knowing how sick he would be for days afterward. During those many hours at the hospital, I came to know other parents whose children had been stricken with the same deadly disease. We all hoped that our child's life would be saved by this experimental treatment. Because we were part of a clinical trial, none of us paid for it. Then the trial was declared a success and terminated before some patients had completed their treatments. That meant families had to have insurance to cover the rest or pay for them out of pocket. Our family had the necessary resources as well as excellent insurance coverage. But other heartbroken parents pleaded with the doctors: What chance does my child have if I can only afford half of the prescribed treatments? Or two thirds? I've sold everything. I've mortgaged as much as possible. No parent should suffer that torment. Not in this country. Not in the richest country in the world.