Adeyinka Gladys Falusi Quotes

Sickle Cell Hope Alive Foundation (SCHAF) came from scarf which is something you put on your head to look beautiful. SCHAF is about giving hope to people born with sickle cell disorder. God gave me the ability to transform peoples’ lives by talking to them. When I talk to people, they understand the purpose of God in their lives. So, I decided to create awareness to people with sickle cell disorder and give them hope.

When God gives you a vision and you do it, with His help you will succeed. When I have challenges, I go to God and He helps me out. As a woman you can achieve a lot by being nice to people. Be charismatic. Always leave your problem at home. Pray and ask God to help you, He is always there to help.

What I mean is that when people recommend you, you must be qualified.

Be aware, know your genotype as a youth, be educated about it and make informed decision later in life. That way, the frequency of SCD will gradually decrease and the burden of it will be reduced in Nigeria.

My friends and pharmaceutical companies give me drugs, I use my money to buy drugs too. People are joining me to take care of them. In 2019, we started the leg ulcers treatment; which is N5,000 per week, per wound. We stopped it in December because we had spent over three million naira on it. We treated 21 wounds. We are doing more than we hoped. It is expanding in leaps and bounds. Last year was the first time we got grants for SCHAF to do research from Gilead Sciences in America. We took 1,000 patients and found very interesting result of Hepatitis B, C and HIV. Contrary to what we thought these patients are now taking care of themselves better because of the awareness. They are not falling into the same pit that ordinary youths are falling into. We are making tremendous efforts and we are getting results.

Chemistry is a science that is applicable to many fields of life because it is analytical. I had always wanted to do research. When I was in Queen’s School, there was a day I went to the lab after school hours and was mixing chemicals, I almost blew up the lab. I put water into acid instead of the other way round. I was disciplined by my principal the next day. I have always had penchant for wanting to find out things.

I almost blew up the laboratory in secondary school.

For many years, I was a technician but when I moved to academics the Lord blessed my work, everything I found out was new. It took me a long time to get to where I am today because I devoted myself to my family. However, when I joined academics, my husband gave me all the necessary support. Even when I was always in the lab and would get home late, he didn’t complain. So, I had peace. I sacrificed a lot but God has rewarded me more than I could ever ask for.

How to do research properly: Take community into confidence and share your result properly.

Before I became a professor, I had visited many countries doing research of Genetics of Sickle Cell Disease. I became a director in UCH and was able to lead the ethics in the University of Ibadan. Under my leadership, the first well-organised and functional Institutional Ethics Committee in Nigeria was established in the University of Ibadan. So, we made the first publication to set up a proper establishment that was acceptable worldwide for institutional, operational aspect of medicine on ethics or research.

However, my Chemistry knowledge brought a difference to Haematology because my work was different from everyone else’s it was analytical. I was finding out a lot about research of blood disorders. Till today, I am still challenged by research ideas in my head. My chemistry background has helped me a lot. It stands me out from the medical people.

The awareness in Nigeria is very low. How many people are doing what we are doing? My retirement money has been going into this project since 2012. My family and friends have been supporting me financially. However, I am not in it for monetary gain. The children we are doing it for are grateful and I am deriving joy from what I am doing. My advice is: Be aware, know your genotype as a youth, be educated about it and make informed decision later in life. That way, the frequency of SCD will gradually decrease and the burden of it will be reduced in Nigeria.

It was not easy. When I went to do research at Oxford, I left my baby, the only son who was one and a half years in Nigeria, crying. However, the work I was to do for one year, I did it in seven months. No laxity, working hard so I could get back home in time. My husband and my mother supported me. In the African setting, if you have a good home, you can make it. If your husband is not in support of what you are doing, you are in trouble. There is no template. If God places you in a family where your husband and in-laws like you, you will combine the two successfully. As a woman, you need the love, support and cooperation of your husband. Both of you must ensure that your children too face their studies so they too can be successful. When God gives you a vision and you do it, with His help you will succeed. When I have challenges, I go to God and He helps me out. As a woman you can achieve a lot by being nice to people. Be charismatic. Always leave your problem at home. Pray and ask God to help you, He is always there to help.

While still in UCH, one day, my director, Prof Tomori, told me to translate my research to the community so I would leave the lab and run to Yemetu and Adeoyo hospitals to tell them about what they can do, that was how I started. Later, Dr Obembe and I formed Sickle Cell Association of Nigeria (SCAN). We were going to churches and organisations to create awareness about sickle cell disorder. When I retired from UCH, I could not continue using SCAN, that was how SCHAF started. We have expanded the scope from awareness alone to “make prevention by making,” Know Your Genotype (KYG), a point of care today.

My Current Research work is on Hepatitis B, and Hepatitis C Prevalence and Epidemiology in Sickle Cell Patients and Controls in South West Nigeria. Community Access and participation towards an attitudinal change for a Preventive approach to Sickle Cell disease in South west Nigeria. Advocacy and Support for Sickle Cell Affected Individuals and their significant others in the Community in South West Nigeria.