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" "There is truth in the tale of the Ugly Duckling. If you are a swan and unrecognised as such, living with a duck family, that thinks you are a duck, expects you to behave like a duck, and at times might coerce you to be more like a duck – you have a problem… You will have poor self-esteem and the need to isolate yourself at the same time that you try not to be isolated. Indeed, if things get bad enough, you will eventually decide that further attempts at communication will only bring on more trouble, so you stop trying to communicate.
Rosemary Susan Barnes, OBE (née Allen; born 16 May 1946) is an English charity organiser and former politician. She became nationally known when she won a by-election in 1987 for the Social Democratic Party.
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There were an incredible amount of text books about autism, which were really only being read by people already with a vested interest in studying or understanding this little known (at the time), complex condition. I wanted to create something quite different in the awareness, understanding and acceptance of autism. I wanted to create a new visual language, a book that would be able to reach ‘under the skin’ and allow others outside of the autism community, to get a feeling about what it might feel like to be autistic
I published Understanding Stanley – Looking through Autism in 2014, a highly personal, long term project about my eldest son, reviewed extensively in international press and on Photomonitor and Firecracker. It was widely praised both within and outside the autism community, for bringing a new and up to date understanding about autism to a wider audience. I have recently completed a commission from the Wellcome Collection, extending a 4 year project about autistic women.
Another long term project A Peculiar Convenience, a tragi-comedic study of our cultural relationship with the natural world, was included in Val Williams’ show New Natural History (1999). I have continued with the work and it was more recently awarded as winner at the Urbanautica International Awards 2020. In 2021 fifteen images from A Peculiar Convenience, were shown in a group show of 13 international artists – un/natural, curated by Format’s Louise Fedotov-Clements and Niamh Treacy at the Lishui Photography Festival in China.