With the extensive treatment and hospitalization, financial burdens are added; little luxuries at first and necessities later on may not be afforded anymore. The immense sums that such treatments and hospitalizations cost in recent years have forced many patients to sell the only possessions they had; they were unable to keep a house which they built for their old age, unable to send a child through college, and unable perhaps to make many dreams come true.

I have had many strange and some bitter experiences in my political life.

It was an essential experience, impacting me on a personal level as well as affecting my family, constituency, and party.

I spent six months in the hospital and five months in a Stryker frame—six months in all—when my back was broken, and I saw the dedication of the people. I knew it was costing a chunk of change for the insurance companies to cover my health insurance on it, but it didn’t present itself—the starkness, the compelling aspects—about the pocketbook. And that has never left me. That aspect of it I’ve been constantly exposed to in the time that I’ve been in the United States Senate, and I go back to it on many different occasions, on the different hearings or things that follow this. One very important set of hearings that I had in the Senate were the hearings in the—We’re getting ahead a little bit but it’s probably worthwhile pointing out because it’s close to this subject matter. In ’78, when we took the committee across the country, we tried to match up, in the hearing, the panel that we’d have. We’d have one panel and we’d have probably ten witnesses, but we’d group them so that there were five subject matters. We would have the way that the United States covered the particular illness, and the way the Canadians covered it, just to present to the American people the difference, you know, how the systems were in terms of real life circumstances. We’d have what were common experiences in the particular areas that families would be affected.

This was a very powerful presentation, in terms of starkness, about health and health insurance and coverage, and basically the moral issue presented here. We were all in the same circumstance. This is a very rare disease that could have happened to anybody. It happened to a United States Senator; it happened to children of working families. There was nothing that they could do about it, and they were being put through this kind of system. This is about as stark as you can get, in terms of the compelling aspects of this issue. A secondary issue that came up that’s related to the public policy is family and medical leave. I’d have to leave the Senate on Friday, and I could go and tell Mike Mansfield that I wasn’t going to be there. Just in terms of the votes, I wasn’t going to be there. It wasn’t a question about me not—I should be with my son and I was going to be with him, but I wasn’t going to lose my job because I was leaving, and I was getting paid for it while I was gone. I was getting paid leave on this.

It breaks my heart purely because I knew some of the people who were actually really suffering and I would be the one sending some money here and there

Over the years, people have gotten inappropriate medical advice from some practitioners, especially at the local council level and of course the consequence was disastrous to their health.

I began to come into close contact with poverty, with hunger, with disease, with the inability to cure a child because of a lack of resources… And I began to see there was something that, at that time, seemed to me almost as important as being a famous researcher or making some substantial contribution to medical science, and this was helping those people.

I have had friends who have taken their lives because of these bills ... When I rose up and said, 'There is blood on your hands,' I was not being hyperbolic.

We have been alienated by costs that soared beyond the means of all but the well-insured or wealthy; by specialization and the cold, quantifying approach that brushes past human concerns, and by the growing despair that comes from spending without regaining health. p. 244

He’s had a lot of practice helping families suffering from experiences that are simultaneously mundane and far more horrifying than anything in a movie: deaths from cancer and dementia, the loss of babies and young children, that sort of thing.

I know what it feels like when you survive on your grandparents’ tiny pension, what it feels like when your mother gets religious and literally loses her mind because of it.

[Referring to private hospital funding alone:] That won't work, it will never be enough, good health care costs a lot of money, remembering 'the distant parts of this province' in which 'assistance cannot be procured, but at an expense that neither [the sick-poor] nor their townships can afford.' ... '[This] seems essential to the true spirit of Christianity, and should be extended to all in general, whether deserving or undeserving, as far as our power reaches.'

What I have spent in mourning is the price I have paid for my healing.