The making of disability justice lives in the realm of thinking and talking and knowledge making, in art and sky. But it also lives in how to rent an… - Leah Lakshmi Piepzna-Samarasinha

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The making of disability justice lives in the realm of thinking and talking and knowledge making, in art and sky. But it also lives in how to rent an accessible porta potty for an accessible-except-the-bathroom event space, how to mix coconut oil and aloe to make a fragrance-free hair lotion that works for curly and kinky BIPOC hair, how to learn to care for each other when everyone is sick, tired, crazy, and brilliant. And neither is possible without the other.

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About Leah Lakshmi Piepzna-Samarasinha

Leah Lakshmi Piepzna-Samarasinha (born April 21, 1975 in Worcester, Massachusetts) is a Toronto and Oakland-based poet, writer, educator and social activist.

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Additional quotes by Leah Lakshmi Piepzna-Samarasinha

Mainstream ideas of “healing” deeply believe in ableist ideas that you’re either sick or well, fixed or broken, and that nobody would want to be in a disabled or sick or mad bodymind. Unsurprisingly and unfortunately, these ableist ideas often carry over into healing spaces that call themselves “alternative” or “liberatory.” The healing may be acupuncture and herbs, not pills and surgery, but assumptions in both places abound that disabled and sick folks are sad people longing to be “normal,” that cure is always the goal, and that disabled people are objects who have no knowledge of our bodies. And deep in both the medical-industrial complex and “alternative” forms of healing that have not confronted their ableism is the idea that disabled people can’t be healers.

Ableism mandates that disabled and sick people are always “patients,” broken people waiting to be fixed by medicine or God, and that we’re supposed to be grateful for anything anyone offers at any time. It is a radical disability justice stance that turns the ableist world on its ear, to instead work from a place where disabled folks are the experts on our own bodies and lives, and we get to consent, or not. We’re the bosses of our own bodyminds. This has juicy implications for everyone, including abled people. (“A Modest Proposal for a Fair Trade Emotional Labor Economy”)

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For years awaiting this apocalypse, I have worried that as sick and disabled people, we will be the ones abandoned when our cities flood. But I am dreaming the biggest disabled dream of my life—dreaming not just of a revolutionary movement in which we are not abandoned but of a movement in which we lead the way. With all of our crazy, adaptive-deviced, loving kinship and commitment to each other, we will leave no one behind as we roll, limp, stim, sign, and move in a million ways towards cocreating the decolonial living future. I am dreaming like my life depends on it. Because it does.

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