Ableism mandates that disabled and sick people are always “patients,” broken people waiting to be fixed by medicine or God, and that we’re supposed t… - Leah Lakshmi Piepzna-Samarasinha

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Ableism mandates that disabled and sick people are always “patients,” broken people waiting to be fixed by medicine or God, and that we’re supposed to be grateful for anything anyone offers at any time. It is a radical disability justice stance that turns the ableist world on its ear, to instead work from a place where disabled folks are the experts on our own bodies and lives, and we get to consent, or not. We’re the bosses of our own bodyminds. This has juicy implications for everyone, including abled people. (“A Modest Proposal for a Fair Trade Emotional Labor Economy”)

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About Leah Lakshmi Piepzna-Samarasinha

Leah Lakshmi Piepzna-Samarasinha (born April 21, 1975 in Worcester, Massachusetts) is a Toronto and Oakland-based poet, writer, educator and social activist.

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The making of disability justice lives in the realm of thinking and talking and knowledge making, in art and sky. But it also lives in how to rent an accessible porta potty for an accessible-except-the-bathroom event space, how to mix coconut oil and aloe to make a fragrance-free hair lotion that works for curly and kinky BIPOC hair, how to learn to care for each other when everyone is sick, tired, crazy, and brilliant. And neither is possible without the other.

Able-bodied practitioners without an anti-ableist analysis—including Reiki providers and anti-oppression therapists—often see us as objects of disgust, fascination, and/or inspiration porn. Mostly, these practitioners dismiss our lived expertise about our bodyminds and their needs, or on the flip side, they tell us we’re “not really disabled!” when we insist on the realities of our lives. This carries over into organizing, where, even in HJ spaces, often when the crips aren’t there, there’s no access info and no accessibility.

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If movements got it together about ableism, there is so much we could win—movement spaces where elders, parents, and sick and disabled folks (a huge amount of the planet) could be present—strength in numbers! We could create movement spaces where people don’t “age out” of being able to be involved after turning forty or feel ashamed of admitting any disability, Crazyness, or chronic illness. We could create visions of revolutionary futures that don’t replicate eugenics—where disabled people exist and are thriving, not, as often happens in abled revolutionary imaginations, revolutionary futures where winning the rev means we don’t exist anymore because everyone has health care.

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