Able-bodied practitioners without an anti-ableist analysis—including Reiki providers and anti-oppression therapists—often see us as objects of disgus… - Leah Lakshmi Piepzna-Samarasinha

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Able-bodied practitioners without an anti-ableist analysis—including Reiki providers and anti-oppression therapists—often see us as objects of disgust, fascination, and/or inspiration porn. Mostly, these practitioners dismiss our lived expertise about our bodyminds and their needs, or on the flip side, they tell us we’re “not really disabled!” when we insist on the realities of our lives. This carries over into organizing, where, even in HJ spaces, often when the crips aren’t there, there’s no access info and no accessibility.

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About Leah Lakshmi Piepzna-Samarasinha

Leah Lakshmi Piepzna-Samarasinha (born April 21, 1975 in Worcester, Massachusetts) is a Toronto and Oakland-based poet, writer, educator and social activist.

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Additional quotes by Leah Lakshmi Piepzna-Samarasinha

A lot of people have had a brush with what it’s like to live a disabled life these last two years, and a lot of them want to forget it as quickly as possible. They’d rather expose themselves to all kinds of harm than continue to be disabled like us — mask, discuss risk, stay home, pass public policies for the safety of all.

Mainstream ideas of “healing” deeply believe in ableist ideas that you’re either sick or well, fixed or broken, and that nobody would want to be in a disabled or sick or mad bodymind. Unsurprisingly and unfortunately, these ableist ideas often carry over into healing spaces that call themselves “alternative” or “liberatory.” The healing may be acupuncture and herbs, not pills and surgery, but assumptions in both places abound that disabled and sick folks are sad people longing to be “normal,” that cure is always the goal, and that disabled people are objects who have no knowledge of our bodies. And deep in both the medical-industrial complex and “alternative” forms of healing that have not confronted their ableism is the idea that disabled people can’t be healers.

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It’s not about self-care—it’s about collective care. Collective care means shifting our organizations to be ones where people feel fine if they get sick, cry, have needs, start late because the bus broke down, move slower, ones where there’s food at meetings, people work from home—and these aren’t things we apologize for. It is the way we do the work, which centers disabled-femme-of-color ways of being in the world, where many of us have often worked from our sickbeds, our kid beds, or our too-crazy-to-go-out-today beds. Where we actually care for each other and don’t leave each other behind. Which is what we started with, right?

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