Christopher Reeve Quotes

Today, 100 million Americans suffer from serious or currently incurable diseases. Fifty-four million Americans are disabled. Our Government is supposed to do the greatest good for the greatest number of people. Beyond that, we have a moral responsibility to help others. Time is absolutely critical. If the Government forces scientists' attempt to make adult stem cells behave like embryonic stem cells, they might waste 5 years or more and fail. In the meantime, hundreds of thousands will have died. Why do we need therapeutic cloning? As a layman, several important reasons come to mind. One, implantation of human embryonic stem cells is not safe unless they contain the patient's own DNA. Two, efforts, to repair central nervous system disorders may need to recapitulate the process of fetal development, and that could only be accomplished by human embryonic stem cells. Three, therapeutic cloning is done without fertilizing an egg. It can be strictly regulated. If we also enforce an absolute ban on reproductive cloning, we will not slide down the dreaded slippery slope into moral and ethical chaos. Any powerful new technology comes with the possibility for abuse. But when we decide that the benefit to society is worth the risk, we take every possible precaution and go forward. The unfertilized eggs that will be used for nucleus transplantation will never leave the laboratory and will never be implanted in a womb. But if we do not make this research legal, if we do not use Government funding and oversight, it will happen privately, dangerous, unregulated and uncontrolled. And our country is about to lose its preeminence in science and medicine. We took a giant step backward in the 1970's when the NIH was not allowed to fund its in vitro research until an advisory commission could be formed to consider the issue. In the meantime, there was rapid progress in England, and the first test tube baby was born in 1978. For purely political reasons, we did not succeed and so far, 177,000 children have been conceived in 400 facilities around the country.

For the record, I am a C-2 ventilator-dependent quadriplegic, which means that I am paralyzed from the shoulders down and unable to breathe on my own. For the last 7 years, I have not been able to eat, wash, go to the bathroom, or get dressed by myself. Some people are able to accept living with a severe disability. I am not one of them, and that is why I have a keen interest in research and am deeply disturbed by unreasonable attempts to block scientific progress. The fact that the House of Representatives banned cloning last year without careful deliberation makes the Senate debate a matter of great urgency.

The prosperity that we've enjoyed in the 90's has spawned a new breed of individuals who have amassed tremendous fortunes at a very young age. Many of them have reaped the rewards of a stock market that seems to have no upper limit. Others have moved swiftly into the fast lane of the information superhighway, and achieved a net worth in the billions long before their 40th birthday. Often they literally don't know what to do with that much money. Unfortunately, philanthropy is not something many of them perceive as an important responsibility of the wealthy. While of course there are a number of notable exceptions, too many of these young billionaires become obsessed with privacy and are more likely to build half a dozen homes in different parts of the world than to give back to society. In the early years of this century, the notion of what it meant to be a "gentleman" informed the actions of the very rich - the Vanderbilts, Astors, Rockefellers, Carnegies, and the like. They too built "cottages" in Newport, and enjoyed their yachts. But they also created foundations, endowed universities, built hospitals and libraries, and donated land for public use. I don't think it's a wild stretch of the imagination to believe that if they knew that 300 million dollars would cure paralysis in 5 years instead of 15, they would have reached for their checkbooks. But we must not wallow in nostalgia for the Gilded Age, when in fact, there is so much potential in the present. Ten corporations could each give 30 million dollars without any undue hardship. When people ask me what are my hopes and dreams for the new Millennium, my answer is I hope technology will not diminish genuine human contact and compassion. I still believe that when people really make the effort to understand each other, the possibilities are limitless. The solutions to the problems we will face in the 21st century --- such as overpopulation, the environment, education, and disease --- will only be achieved by every one of us doing our part. We must appeal to the government, the private sector, venture capitalists, corporations of all sizes, and every individual who can only afford to give 5 dollars to help further the cause. You in the media can lead the way by creating awareness and affecting public opinion. In the last hundred years, we invented the automobile, the airplane, and weapons of mass destruction. We journeyed to the moon and built shiny new cities throughout the country. We concerned ourselves with material success, convenience, and a higher standard of living. Now it's time for America to take care of its own. The life expectancy for Americans has practically doubled over the course of this century. Now it is our responsibility to ensure that from cradle to grave, these years are ones of quality and productivity, not pain and suffering. The time is now, at the dawn of a new Millennium.

Sitting in a chair for more than 4 years now has given me plenty of time to think about many of the distorted and irrational values in our society. For example, all the researchers now agree that the damaged spinal cord can and will be repaired. But, they caution, recovery will only benefit the fittest. This means that the patient must exercise diligently to prevent muscle atrophy, and the loss of bone density and cardiovascular capacity. Special equipment ranging from electrodes that stimulate muscle groups, tilt tables that allow people to stand and bear weight, exercise bicycles, and treadmill therapy, which enables even a quadriplegic to walk while suspended in a harness, are all available. When the cure comes and signals from the brain once again reach the body, individuals who have kept in shape will be able to be rehabilitated relatively quickly and will no longer need payments from their insurance company. But no company will pay for this proactive therapy which would save them hundreds of thousands of dollars in the long run. So most spinal cord injury victims simply deteriorate while they continue to fight for basic quality of life coverage. Meanwhile, the CEOs of many insurance companies are making salaries in the neighborhood of 300 million dollars a year. How much profit is reasonable and justifiable? The same distortion of values is evident in entertainment, sports, and politics. Why do studios pay some of their biggest stars 20 million dollars a picture? Does even the most gifted athlete deserve 91 million dollars over 7 years to swing a bat and catch a baseball? Why is it that so many of our elected officials end up in office primarily because they have been able to outspend their opponents? At the other end of the spectrum, why has the NIH since its inception in 1940 had to plead incessantly for enough money to battle every disease in the encyclopedia?

[W]hile the budget for research is negotiated annually on Capitol Hill, Alzheimer's has crippled 4 million Americans. This disease alone costs our nation 100 billion dollars every year and this number is expected to rise dramatically as baby boomers continue to age. Parkinson's afflicts nearly half a million Americans and costs us at least 6 million a year. Another half million Americans suffer strokes each year, costing more than 30 million in medical treatment, rehabilitation, and long-term care. Diabetes afflicts nearly 16 million people. It is the leading cause of blindness, kidney disease, and limb amputations; and it costs our nation between 90 and 140 billion dollars a year.

I've always been a practical person, not one to waste time pursuing unrealistic goals or dreams. But today's dreams can soon become tomorrow's reality in biomedical research. Scientists studying how the brain's cells and chemicals develop, interact, and communicate with the rest of the body have been making strides in alleviating the suffering of patients with Alzheimer's, strokes, Parkinson's, and MS, as well as brain and spinal cord injuries. Only recently researchers have dis-covered that stem cells, which have the ability to adapt to any environmentt in the body, will probably be the most important factor in curing all of these conditions. For example, in order to repair the damaged spinal cord, stem cells can be extracted from the ventricles of the brain or from bone marrow and genetically engineered to become nerve tissue. Highly successful experiments on mice have shown that when these transformed stem cells are transferred into the site of the injury, they apparently understand that their mission is to replace the damaged circuitry, which causes significant functional recovery. Mice that have had their spinal cords completely transected have been able to walk confidently across tightropes and climb rope ladders after this treatment. You would think that these breakthroughs would be a cause for celebration throughout the disabled community. In scientific terms, we are very close to achieving the impossible; in practical terms, we have a long way to go. But it is very disheartening to hear a leading researcher announce, "give us a hundred million dollars and we can cure Parkinson's"; or, "if we raise 300 million dollars, we can find a cure for paralysis in 5 years instead of 15." The idea of spending 15 more years in a wheelchair being fed, dressed, and washed by others would be tolerable if the scientists were still in the dark and there was no hope of recovery. I think most disabled people would agree with me that it is very difficult to cope psychologically with the stark reality that our future now depends mostly on money.

When people project and understand that in an instant and as they grow older they face Parkinson's, Alzheimer's, MS, strokes, all the diseases of the brain and central nervous system, which will effect the entire population as we get older. People begin to realize hey I'm lucky, I'm just temporarily not disabled. So, the point is we're beginning to see equality, we're beginning to see new opportunities and that brings me to the other part we've already talked about, acceptance and the other part is denial. And what I mean by that, and everybody has to work it out for themselves, my point of view may not be your point of view, so please hold onto your belief and let me hold onto my belief. But my belief is that there is nothing we can't accomplish if we set our minds to it.

[I]t seems to me that this past century has accomplished two Civil Rights movements. First, the right for blacks and Hispanics and people from all different nationalities to take their place in the middle of society and that has been achieved at great cost. It is a tremendous struggle in America, but now we think nothing of walking into an office and finding that a black person is the president of the company instead of a janitor cleaning the hallways. And then we learned that the talent that blacks and Hispanics have, always had, their intelligence, dedication and willingness to work is no less than anybody else. They have been able to persevere and finally I think we have really overcome tremendous amounts of prejudice, not only in the United States, but throughout the world. The second great Civil Rights movement was equality for women. It started at the end of the last century. Women finally got to vote. We've gotten all the way to the point now where women aren't expected to stay home and just be mothers and it's okay to be a single parent and it's okay to go out and pursue your ambition and your dreams. And that's been a very important breakthrough because there are so many areas where women are more talented and have more to offer than men do. And now we are beginning to see everybody working side by side in society and in the workplace. But, there remains one HUGE minority that is still terribly discriminated against. And that population is the disabled population. And that comprises 1/5 of the world's population. In the United States, for example, we have 54 million disabled people and the thing that's very difficult is when blacks and Hispanics and women were fighting for equal rights there was a level of discomfort. But nothing approaching what happens when "normal" people look at the disabled and are uncomfortable. That is a prejudice that they MUST overcome because we're not in a position to always look our very best or to feel our very best, or to be pleasing to the eye because we have suffered terrible debilitating diseases and injuries. But what's happening now is the kind of discrimination that is so bad and I want to tell you that it exceeds any prejudice that ever occurred before in the previous civil rights movements.

Now fortunately, even a couple of years before my injury, we were in the dark ages about spinal cord and the common wisdom was that the cord could not regenerate. But I want to say that one of the great heros and really the father of regeneration is a distinguished Canadian who will go down in history as the father of spinal cord recovery. And that is Professor Alberto Aguierro at McGill University. He is the one who discovered that there are two protein molecules at the base of the brain stem. The positive function of these molecules is to stop the brain from overdeveloping during gestation. But then in the adult these protein molecules perform a negative function, they stop the regeneration of nerves in the spinal cord. Now you can chop off your hand then a surgeon can sew it back on again and you can go out and throw a baseball, because of the plasticity and ease with which the peripheral nervous system is able to make appropriate connections. And the good news now for us is that they have discovered nerves regenerate in the spinal cord they seek to find appropriate connections across the injury, across the lesion. And when these appropriate connections are made there will be improvement in sensation and in motor function and depending on the severity of the injury, there are endless possibilities to how much recovery can occur. If someone has been very damaged there may be limitations, if someone is less damaged there may be a better outcome. But the point is, through regeneration the use of human embryonic cells, the use of gene therapy, the spinal cord can and will regenerate and so it is only a question of time before these techniques make their way into humans. One of the most exciting discoveries was made by a Dr. Viscovi in Milan who found that there are cells called epitomal cells which were thought to only exist in again, in the child during gestation, because these cells are undifferentiated and they can become anything. Well, very recently, just two months ago these cells were found to exist in the adult in the ventricles of the brain, in the spinal cord and even in the skin. And this is tremendously exciting because the hope, the best hope for recovery now, is to biopsy these cells from your skin, from your hand for example, they could grow hundreds of thousands of cells in a petri dish and genetically instruct them to become neurons and axons. They would then be injected inside of the injury and they would become the nerves necessary to carry messages from the brain to the rest of the body. Now that would have been science fiction a few years ago, but it's here and it's happening and it doesn't matter whether it's an acute injury or a chronic injury. So I offer you the specific detail, not to give you a boring science lecture but to tell you there is very real tangible hope, very real hope...And one of the great advantages of this technique is that there is no danger of toxicity to the body or rejection by the immune system. And what I love about it is the body is healing itself. Taking cells from one part and using them in another area and I think that's some-how a beautiful design, rather than loading up the body with more chemicals and more drugs and more artificial agents.

The insurance companies see this legislation as a tax. My question is: why is that unreasonable, particularly when the insurance companies would save so much money in the long run. Research will keep the American people healthier, resulting in fewer insurance claims. We tax oil companies and use the money to build and maintain highways. In New York state, if you win the lottery, you pay a significant tax which goes to a state fund for education. Most states have sales taxes which are a major source of revenue for a wide variety of programs and services that benefit the public. Why shouldn't insurance companies be asked to help solve the health care crisis in this country? Because of the advances to date, we can save millions of lives. Our challenge for the future is not just improving the quality of life of those we save, but finding the cures to prevent that suf-fering in the first place. Our scientists are on the threshold of major breakthroughs in almost every disease or condition that now cause so much hardship for people across the country and around the world. The insurance companies owe it to our families and our society to make a small sacrifice which can do so much good. I hope that this excellent piece of legislation which already has tremendous grassroots support will be enacted during this legislative session.

[R]ecent experience has shown that even the most formidable lobbyists cannot derail legislation that has bipartisan and public support. The NRA was not successful in repealing the ban on assault weapons. The American public watched in disbelief as a dozen tobacco company executives testified at a Senate hearing that nicotine is not addictive and denied allegations that nicotine levels were being raised in cigarettes in order to increase addiction. Now we are witnessing the demise of the "Marlboro Man" and "Joe Camel". There are lawsuits in virtually every state by individuals demanding punitive damages against the tobacco companies. Just this week, thousands of government workers petitioned the President to ban smoking in government buildings. I sincerely doubt that the tobacco lobby will be able to stop this initiative. The religious right led by Pat Robertson, Pat Buchanan and the Christian Coalition tried twice unsuccessfully (in 1992 and 1996) to hijack the Republican Party and failed in both attempts. Here again, was a case when a supposedly powerful lobby did not succeed in promoting their agenda.

We must not stop this progress because we are unwilling to commit enough money to get the job done. It is imperative that the public--and more importantly our elected representatives understand that research today is not speculative. It is not a waste of money. It is the only way to relieve suffering while helping to save the American economy at the same time. Making this a reality demands an investment of real dollars--funds that just don't fit within the constraints of the Budget Agreement passed by Congress this week, which proposes to reduce overall health spending by $100 million next year and by more than $2 billion over the next 5 years.

When I met with the President in May of 1996, he stated that the ratio of research to clinical results is greater in this country than anywhere else in the world. Money spent on research brings practical results that absolutely justify the investment. Let's look at a few examples. NIH-sponsored research has resulted in the identification of genetic mutations that cause osteoporosis, Lou Gehrig's Disease, cystic fibrosis and Huntington's disease. Effective treatment for Acute Lymphoblastic Leukemia (ALL) has been developed and today nearly 80 percent of children diagnosed with ALL are alive and disease-free after 5 years. Because of research, the nature of medicine is changing. We are approaching disease at the cellular level. We are targeting problems earlier, more specifically, less intrusively, with greater success and fewer side effects. Advances in genetics will soon let us intervene in disease before symptoms appear.

What I do is based on powers we all have inside us; the ability to endure; the ability to love, to carry on, to make the best of what we have — and you don’t have to be a ‘Superman’ to do it.

Perhaps it is my job to offend some scientists. I'm not asking them to be reckless or unprofessional, but I do want to reinforce a sense of urgency.