At the time that we were debating family and medical leave, these families would lose their jobs if they didn’t show up, let alone get paid for it, you know? They would either lose their job for not showing up, or at least lose their pay, because they didn’t have the kind of coverage that we had in the United States Senate. That was at the same time that we were debating the family medical leave, and here you had about the most stark—the decision that parents have to make about whether to be with a child or—to have the job that they need, or the job that they love. I didn’t use the example of Teddy, really, during the debate, until the very end, during the final windup. After President [George H.W.] Bush I vetoed it in 1992, I sort of pulled out the stops on it.

This was a very powerful presentation, in terms of starkness, about health and health insurance and coverage, and basically the moral issue presented here. We were all in the same circumstance. This is a very rare disease that could have happened to anybody. It happened to a United States Senator; it happened to children of working families. There was nothing that they could do about it, and they were being put through this kind of system. This is about as stark as you can get, in terms of the compelling aspects of this issue. A secondary issue that came up that’s related to the public policy is family and medical leave. I’d have to leave the Senate on Friday, and I could go and tell Mike Mansfield that I wasn’t going to be there. Just in terms of the votes, I wasn’t going to be there. It wasn’t a question about me not—I should be with my son and I was going to be with him, but I wasn’t going to lose my job because I was leaving, and I was getting paid for it while I was gone. I was getting paid leave on this.

Experimental research basis by the NIH. There were probably less than a hundred that had gone through it, but they had had positive numbers on that. Before that, it was very tough; the survival rate was not good, you know, 15 to 20 percent. But after this it was 85 or 90 percent. So that was enormously encouraging. After about three months of my being involved in it, they had completed the whole regime for it. While it’s an experimental drug, it’s paid for by the company or whoever is producing it. But once it’s stopped, the payment stops, and these families had to pick it up. Since it’s an experiment, none of the insurance would cover it, except mine, which is Senate insurance, federal employees’ insurance. The cost is $2,700 a treatment. These parents would be in the waiting room—they had sold their house for $20,000 or $30,000, or mortgaged it completely, eating up all their savings, and they could only fund their treatment for six months, or eight months, or a year—and they were asking the doctor what chance their child had if they could only do half the treatment. Did they have a 50 percent chance of survival? A 60 percent chance of survival?

After we made a judgment about which regime we were going to follow—there had been several recommendations, and we spent hours trying to make a decision. What was interesting was that there were alternative ways of proceeding, and when the final decision was made, which I made, those who had different regimes were all very supportive. There was a real coming together of people who were all looking for a common resolution and solution to the challenges they were involved in. They all had different pathways, but nonetheless, once the judgment was made, they all were incredibly supportive. It required that Teddy spend three days every three weeks at the Children’s Hospital in Boston, taking methotrexate, which is a medication that helps kill cancer cells, and this other medication [citrovorum] that helps to alleviate some of the adverse effects of methotrexate. That involved me giving him shots, which I did, both before he came on up to Boston and then right after he had finished the immediate treatment—for the next couple of days intensively, and in the night a couple of times, and then periodically, every four or five days after that.

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I was exposed to the most extraordinary groups of doctors and nurses at the Lahey Clinic. Dr. [Herbert] Adams, who was the head doctor up there—there may have been a day when he didn’t come in and see me, but I don’t remember it. This included Christmas Day, New Year’s Day, the whole time I was up there. The commitment and the dedication of the doctors and the nurses, and the support systems and the professionals, was just breathtaking. I think it probably led me to the very strong commitment that I’ve always had, politically, to strong support for nurses, for support personnel, because I always recognized their indispensable role. The doctors, yes, but the support personnel for their patience and their time. During the period when Teddy—Now we’re probably into ’74, so we’ll have to come back to how this intersected with the policy judgments and decisions. It was all within a few years of each other—the dramatic time that I had in the Dana-Farber Institute in Boston with my son Teddy. He had a treatment and we found out that he had this leg cancer that required the loss of his leg, and that’s a special circumstance that we can get into.

So healthcare was something that had a real powerful impact. Also, in 1962, I remember the incident when my brother lost a baby to hyaline membrane disease. The child lived three days and then died at the Children’s Hospital in Boston. The interesting factor and force of all of this is that, if the child had been born two years later, it would have survived. The progress that was made in medical research would have permitted the child to survive. Here was the person who was the President of the United States, with all of the assets that he could have, and still was unable to see a positive outcome of this. Within all of that, financial security was certainly present. It was present also in 1964 when I had the plane crash we’ve described earlier. I was able to get medical attention, initially up at the Cooley Dickenson Hospital, and then later at the Lahey Clinic that was located in Boston, before it moved down outside of Boston in later years.

Later, in the early ’70s, we were faced with the health challenges that Teddy was facing with cancer of the leg. I always thought it was osteosarcoma, but I’ve been told it may have been chondrosarcoma. I remember very clearly his talking about and complaining about a bump on his leg, and how it wasn’t getting any better and it was getting sorer. One morning I was headed to Boston and I was getting briefed about the various health meetings I was having in Boston. One of the staff people, Phil Caper, was also a doctor, and I had mentioned to Phil about the swelling. He examined Teddy and said, “You’ve got to get an X-ray on it right away.” I remember hearing later in the morning when I was up in Boston, about how they looked at the X-ray and saw the cancer, and that this was just enormously serious—life threatening. It was going to take immediate and dramatic action, which presented a wide range of both emotional and real decisions about the removal of his leg—the conversation prior to that time and the conversation after that time. At the same time, my niece was getting married, Kathleen [Kennedy]. So this was a very emotional, roller-coaster period in my life. And then much later, my daughter Kara [Kennedy] found out that she had lung cancer. That was as a result of a picture that had been taken of her lung after—She had pain in her shoulder and was under medical attention for stenosis, and the very good doctor suggested that they take a picture of the shoulder. They found that she had lung cancer, and we had to move within a matter of hours. We went, later that afternoon, up to Johns Hopkins and had discussions up there with their medical team, which were very unsatisfactory. Then we had medical consultations with some experts and made a decision to follow a different route, which was surgery, which has worked out very successfully. She’s now four or five years free from any cancer.

When Patrick developed it, we brought in medical experts at least once a year and sometimes twice a year, from around the country. They came in at nighttime. They would examine Patrick and talk with him, and then they would go off by themselves and have a meeting at a hotel, and then they would come over in the morning and brief me on their understanding of his condition, and their recommendations. Since he was chronic, there was a whole series of different types of medications that they would talk about, and the advantages and disadvantages of each. That continued all the way up through his graduation from Andover, even in his last year at Andover. The last meeting was at the Parker House in Boston. He had some time off and my son [Edward M. Kennedy, Jr.] Teddy was going to take some time off, so the three of us were going to go away, and the doctor said, "Don’t go further than 35 or 40 minutes from a hospital." So we went down to Key Biscayne, because we were 35 minutes away from the hospitals down in Miami. So, it was a major factor and a force as he was growing.

I was elected to the Senate, and in the early years as my family arrived I was exposed to the power of asthma with a small child, Patrick [Kennedy]. We detected when he was two that he was a chronic asthmatic. He had the test that is given to children, where they have pinpricks along their arm—I think it’s 24 pinpricks—of different kinds of allergies. His arm looked like a nuclear meltdown; it just absolutely reddened, all of it. He was allergic to everything. My brother Jack [John F.] Kennedy was allergic to cat fur and my sister Pat [Patricia Kennedy Lawford] had allergies, and maybe the others had some, but I certainly noticed those as they were growing up. My brother Jack would come back to the Cape and would go into his room, and he’d come out about an hour later, storming mad, wondering who let the cat sleep in the bed while he had been away, or some cat had come on in. He’d be battling the allergies for the next several hours.

I suppose the first major challenge that I saw was in 1961 when my father had the very serious stroke, which really disabled him in a very important way. He lived on for a number of years afterwards, but I saw the enormous—I was exposed to the dramatic moments of the time right after he had that stroke, about whether he was going to live or die, and also to the whole issue of being significantly disabled, and the corresponding actions of incredible care and loving attention that he was able to receive. The dedication of nurses and healthcare personnel, and the patience and the love and commitment of so many of those who worked with him, took an immense amount of time. Attention to this was a very powerful factor in terms of my whole observation of this part of my life. He eventually went to the Rusk Institute in New York and got specialized attention from this fellow, Henry Betts, who is still alive and now runs an institute in Chicago. Betts was a junior figure to [Howard A.] Rusk, who was the national leader in rehabilitation. This was a first dramatic opening in my life, other than Rosemary.

I have commented, probably earlier in our discussions, about the fact that my sister Rosemary [Kennedy] was mentally and intellectually challenged, and how she always was considered special in our family. As a small child, I found that I could play with children that were my age, or in many instances I would find that she was both available, acceptable, and desiring to play ball with me. We’d take a soccer ball and either play soccer, or bounce a lighter ball, like a beach ball, and play tag with it, or other children’s games. She always seemed to be willing to spend more time with me than the others, who were always distracted in playing other games. I noticed that she had some special kinds of needs. I observed that early as a child. I didn’t understand it in the early years, and it took a while, obviously, to grasp the full dimensions of that, but I noticed that that was different. The regular kinds of childhood activities with childhood accidents when I was growing up were probably not different from other kinds of activities of large families.

I thought maybe I’d start off initially with my association with the health issue and also the family’s association with the health issue and why it was a central force in my life growing up, and with my early days in the United States Senate—how the opportunity to become involved in it from a policy point of view, in many respects, goes back to my own observations about the importance of health in a personal way, but also in a way that exposed me as a young person to the policy considerations, and the impact that it had on me.

Many Iraqis have been working with our Armed Forces, our diplomatic mission, and our reconstruction teams in Iraq and have performed valiantly, and their lives are at risk. Many have lost their lives and many more have lost their homes, their property, and their livelihood. For some, it will be too dangerous to ever return home. America has a special obligation to keep faith with the Iraqis who now have a bulls-eye on their back because of their association with our Government. Our bipartisan legislation will establish the kind of process that Ambassador Crocker, David Keene, Julia Taft, Roy Medved, Lanny Davis, and many others have called for to help these Iraqis who have sacrificed so much for the United States. I ask unanimous consent that the Washington Post article and other articles I have mentioned be printed in the Record. I urge my colleagues to support our legislation, S. 1651, to keep the faith with the many brave Iraqis whose lives are in great danger because they have the courage to work with the United States.

The Senate is obviously divided on the best overall policy to pursue on the war. I thought it was a mistake from the beginning. That is no secret. Some of our colleagues are convinced that continuing the use of military force in Iraq is necessary to protect our national security. But our divisions on that issue should not obscure the fact that all of us on both sides of the aisle agree that America owes an immense debt of gratitude to these Iraqis, and we have a special responsibility to help them. They have supported our effort, saved American lives, and are clearly at great risk because of it.

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According to the article, Ambassador Crocker has called for establishment of an immigrant visa program for these Iraqi employees. In fact, Senators Smith, Biden, Hagel, Lieberman, Leahy, Levin, and I have introduced legislation which establishes a program to do precisely what Ambassador Crocker calls for. Our legislation establishes an immigrant visa program for Iraqis who have worked for or directly with the United States government for at least 1 year. Our Government now provides such special immigrant visas but only for Iraqi and Afghan translators and interpreters. Our bill expands it to include Iraqis in other professions who have been employed by us or who have worked directly with us. In addition, our legislation creates additional options for Iraqis who are under threat because of their close association with the United States to apply to our refugee resettlement program.