Inclusion without power or leadership is tokenism. (p. 127) - Leah Lakshmi Piepzna-Samarasinha

Most sick and disabled people I know approach healing wanting specific things—less pain, less anxiety, more flexibility—but not usually to become able-bodied. And many of us don’t feel automatically comfortable going to healing spaces at all because of our histories of being seen as freaks, scrutinized, infantilized, patronized with “What happened?” prayed over, and asked, “Have you tried acupuncture?” and a million other “miracle cures.”

It’s not about self-care—it’s about collective care. Collective care means shifting our organizations to be ones where people feel fine if they get sick, cry, have needs, start late because the bus broke down, move slower, ones where there’s food at meetings, people work from home—and these aren’t things we apologize for. It is the way we do the work, which centers disabled-femme-of-color ways of being in the world, where many of us have often worked from our sickbeds, our kid beds, or our too-crazy-to-go-out-today beds. Where we actually care for each other and don’t leave each other behind. Which is what we started with, right?

Many disabled people noted that the pandemic made for a “cripping of the world” — where for perhaps the first time in a while, the world, gripped by a global pandemic, dwelled in disabled reality. Remember how, for a minute, so many forms of access disabled people had long fought for were here because abled people needed them? Remember virtual work, pandemic pay for frontline workers, online school, online events with captioning and ASL, teaching people how to freaking wash their hands and stay home when they were sick, the ability to reschedule an appointment or a plane ticket when you got sick and not get yelled at or charged a fee, and immunocompromised shopping hours? These waves of access, mixed with mass resistance in the streets and at home against anti-Black, white supremacist violence, made for a powerful-ass two years. If that kind of mass access, resistance and mutual aid could happen, revolutionary change could happen too. The state wants us to forget that.