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" "You wanna know how you'll know if you're doing disability justice? You'll know you're doing it because people will show up late, someone will vomit, someone will have a panic attack, and nothing will happen on time because the ramp is broken on the supposedly "accessible" building. You won't meet your benchmarks on time, or ever. We won't be grateful to be included; we will want to set the agenda. And what our leadership looks like may include long sick or crazy leaves, being nuts in public, or needing to empty an ostomy bag and being on Vicodin at work. It is slow. It's people even the most social justice-minded abled folks stare at or get freaked out by. It looks like what many mainstream abled people have been taught to think of as failure. (p. 124)
Leah Lakshmi Piepzna-Samarasinha (born April 21, 1975 in Worcester, Massachusetts) is a Toronto and Oakland-based poet, writer, educator and social activist.
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Ableism mandates that disabled and sick people are always “patients,” broken people waiting to be fixed by medicine or God, and that we’re supposed to be grateful for anything anyone offers at any time. It is a radical disability justice stance that turns the ableist world on its ear, to instead work from a place where disabled folks are the experts on our own bodies and lives, and we get to consent, or not. We’re the bosses of our own bodyminds. This has juicy implications for everyone, including abled people. (“A Modest Proposal for a Fair Trade Emotional Labor Economy”)
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