Not only do physically disabled people have experiences which are not available to the able-bodied, they are in a better position to transcend cultural mythologies about the body, because they cannot do things the able-bodied feel they must do in order to be happy, ‘normal,’ and sane….If disabled people were truly heard, an explosion of knowledge of the human body and psyche would take place.
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If you are disabled, it is probably not your fault, but it is no good blaming the world or expecting it to take pity on you. One has to have a positive attitude and must make the best of the situation that one finds oneself in; if one is physically disabled, one cannot afford to be psychologically disabled as well. In my opinion, one should concentrate on activities in which one's physical disability will not present a serious handicap. I am afraid that Olympic Games for the disabled do not appeal to me, but it is easy for me to say that because I never liked athletics anyway. On the other hand, science is a very good area for disabled people because it goes on mainly in the mind. Of course, most kinds of experimental work are probably ruled out for most such people, but theoretical work is almost ideal. My disabilities have not been a significant handicap in my field, which is theoretical physics. Indeed, they have helped me in a way by shielding me from lecturing and administrative work that I would otherwise have been involved in. I have managed, however, only because of the large amount of help I have received from my wife, children, colleagues and students. I find that people in general are very ready to help, but you should encourage them to feel that their efforts to aid you are worthwhile by doing as well as you possibly can.
What people with disabilities want is to relate. This is something unique. It makes people who are closed up in the head become human. The wonderful thing about people with disabilities is that when someone important comes, they don’t care. They care about the relationship. So they have a healing power, a healing power of love.
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Most sick and disabled people I know approach healing wanting specific things—less pain, less anxiety, more flexibility—but not usually to become able-bodied. And many of us don’t feel automatically comfortable going to healing spaces at all because of our histories of being seen as freaks, scrutinized, infantilized, patronized with “What happened?” prayed over, and asked, “Have you tried acupuncture?” and a million other “miracle cures.”
Although people with disabilities share social stigmatization, and sometimes are brought together by common experiences and common goals, their lives and interests have varied widely according to race, class, sexuality, gender, age, ideology, region, and type of disability-physical, cognitive, sensory, and/or psychological.
A lot of people have had a brush with what it’s like to live a disabled life these last two years, and a lot of them want to forget it as quickly as possible. They’d rather expose themselves to all kinds of harm than continue to be disabled like us — mask, discuss risk, stay home, pass public policies for the safety of all.
Part of the problem with the word 'disabilities' is that it immediately suggests an inability to see or hear or walk or do other things that many of us take for granted. But what of people who can't feel? Or talk about their feelings? Or manage their feelings in constructive ways? What of people who aren't able to form close and strong relationships? And people who cannot find fulfillment in their lives, or those who have lost hope, who live in disappointment and bitterness and find in life no joy, no love? These, it seems to me, are the real disabilities.
Part of the problem with the word disabilities is that it immediately suggests an inability to see or hear or walk or do other things that many of us take for granted. But what of people who can’t feel? Or talk about their feelings? Or manage their feelings in constructive ways? What of people who aren’t able to form close and strong relationships? And people who cannot find fulfillment in their lives, or those who have lost hope, who live in disappointment and bitterness and find in life no joy, no love? These, it seems to me, are the real disabilities.
I've learned that disability pushes us to examine ourselves and the difficult questions about the American past. Which peoples and which bodies have been considered fit and appropriate for public life and active citizenship? How have people with disabilities forged their own lives, their own communities, and shaped the United States? How has disability affected law, policy, economics, play, national identity, and daily life? The answers to these questions reveal a tremendous amount about us as a nation.
I learn from other disabled people all the time. I'm learning not that I am luckier than them, though. I am learning that it's a genius idea to use a pair of barbecue tongs to pick up things that you dropped. I'm learning that nifty trick where you can charge your mobile phone battery from your chair battery. Genius. We are learning from each others' strength and endurance, not against our bodies and our diagnoses, but against a world that exceptionalizes and objectifies us.
I think the difficulty that has come with that is that today we understand disability as almost exclusively a medical situation, and thus stress cure, and when cure doesn’t happen, folks are considered failures, and folks with disabilities tend to be only understood in this very medical framework, and that, you know, the reality that folks with disabilities have lives far outside of, you know, their medical diagnoses is often ignored. The medical diagnoses are often considered to be permanent, and that diagnosis has come to have great power, particularly with stigmatized diagnoses, of devaluing people economically, socially, and people...have become simply less integrated into the communities after diagnosis...under the medical model, there’s nothing to be learned or gained from disability, and I would argue instead that human variability is really quite immense and can be a great blessing, and it’s something we rely on as a society, but when we categorize people with disabilities, you know, as inherently deficient and in need of cure, always in need of change and never good enough, that really does folks a disservice and it damages all of us.
What is clear to me is that disabled people have never felt safe. Many of us view masking as a form of solidarity with workers, activists, and people of color all over the world fighting fascism and genocide. But mask bans send the message that it is a crime to be disabled. I think of people who have fought hard to stay relatively safe since early 2020, those who hang on a precipice that feels like it could fall at any moment. Some days I wonder what my breaking point will be.
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