Despite the suffering, there are a lot of great things going on in the tick-borne illness community. “I have seen the momentum in the last three to five years accelerating at a pace that I could have never imagined. Look at the scientists, the doctors, the clinicians, the nonprofit leaders, the advocates who are out there making a difference. We are so close, I think, in my lifetime, to this tipping point. This is something we should all be excited about, and this is something that gives me hope.”

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When I was a fighter pilot, when we would go into combat, which in a lot of ways is what we are in against this disease and the medical system that doesn't support us," she said. "I would say to my wingman before we would launch, "No matter what, be a help, not a hindrance. Ask yourself, is what I'm about to say or do going to be helpful? Or is it going to be a hindrance?"

That phrase means everything”, “It is the gentleman’s handshake. It means: We have an expectation of the professional execution of this mission. I promise you I will hold myself accountable to that standard, and you will hold me to that standard. That wingman contract is the culture. It’s the principles and values that drive you.”

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I didn’t know what the word gaslighting meant prior to becoming a tick-borne illness patient, but I know what it is now. I found that I was treated more seriously, and more respectfully, and with dignity every time I brought somebody with me.”

What happened is, we did it over and over until I got it right. It was the right thing to do by our customer and client [the audience on the ground]. My teammates helped me from a place of kindness and commitment,” she says. “It’s never beneath any of us to offer help, too.”

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"You know, whether we like it or not sometimes when you’re a first, you end up speaking on behalf of the group and that can be hard and that can be complex and gnarly but somebody has to go first,""And you definitely want to do it in a way that creates more opportunity for the people that follow.