"You know, whether we like it or not sometimes when you’re a first, you end up speaking on behalf of the group and that can be hard and that can be complex and gnarly but somebody has to go first,""And you definitely want to do it in a way that creates more opportunity for the people that follow.

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Despite the suffering, there are a lot of great things going on in the tick-borne illness community. “I have seen the momentum in the last three to five years accelerating at a pace that I could have never imagined. Look at the scientists, the doctors, the clinicians, the nonprofit leaders, the advocates who are out there making a difference. We are so close, I think, in my lifetime, to this tipping point. This is something we should all be excited about, and this is something that gives me hope.”

All of those characteristics and traits apply to every single patient. You all should be proud of yourselves. It has been harder to be a tick-borne illness patient than it ever was to fly in combat. I found the Lyme disease community to be as courageous and even more so, in some cases, as honorable and noble as the fighter pilots and the men and women that I went to war with,”

Everything that she needed to be a good fighter pilot, such as discipline, focus, commitment, determination, and confidence are the traits and the characteristics she needed to survive the worst depths of her illness and to thrive today, even though she still lives with chronic symptoms.

When I was a fighter pilot, when we would go into combat, which in a lot of ways is what we are in against this disease and the medical system that doesn't support us," she said. "I would say to my wingman before we would launch, "No matter what, be a help, not a hindrance. Ask yourself, is what I'm about to say or do going to be helpful? Or is it going to be a hindrance?"

I now know that your job shouldn’t be your identity. Boom, I go from this elite, high-performing person, physically and mentally, to just being completely broken overnight. I’m this independent confident type A fighter pilot, and now I can’t even go to the restroom by myself or bathe by myself—overnight,”