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" "I believe that Greta’s ability to tweet #Aspiepower and frame her autism as a superpower is a product of brave-ass autistic women and nonbinary people who have been speaking about our lives and demanding an end to the ableist violence of a world that wants us ashamed and self-hating rather than proudly ourselves and able to access housing, meaningful work (or the right not to work), safety from police murder and medical violence – and love, respect and community, as we are.
Leah Lakshmi Piepzna-Samarasinha (born April 21, 1975 in Worcester, Massachusetts) is a Toronto and Oakland-based poet, writer, educator and social activist.
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The making of disability justice lives in the realm of thinking and talking and knowledge making, in art and sky. But it also lives in how to rent an accessible porta potty for an accessible-except-the-bathroom event space, how to mix coconut oil and aloe to make a fragrance-free hair lotion that works for curly and kinky BIPOC hair, how to learn to care for each other when everyone is sick, tired, crazy, and brilliant. And neither is possible without the other.
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You wanna know how you'll know if you're doing disability justice? You'll know you're doing it because people will show up late, someone will vomit, someone will have a panic attack, and nothing will happen on time because the ramp is broken on the supposedly "accessible" building. You won't meet your benchmarks on time, or ever. We won't be grateful to be included; we will want to set the agenda. And what our leadership looks like may include long sick or crazy leaves, being nuts in public, or needing to empty an ostomy bag and being on Vicodin at work. It is slow. It's people even the most social justice-minded abled folks stare at or get freaked out by. It looks like what many mainstream abled people have been taught to think of as failure. (p. 124)