Leah Lakshmi Piepzna-Samarasinha Quotes

It doesn’t have to be either healing or organizing: it’s both. Someone asked me at a talk I was giving at Portland State University’s Take Back the Night how we choose between healing and activism. I tried to tell them that healing justice is not a spa vacation where we recover from organizing and then throw ourselves back into the grind. To me, it means a fundamental—and anti-ableist—shift in how we think of movement organizing work to think of it as a place where building in many pauses, where building in healing, where building in space for grief and trauma to be held makes the movements more flexible and longer lasting.

Everyone I know longs for healing. It’s just hard to get. The good kind of healing: healing that is affordable, has childcare and no stairs, doesn’t misgender us or disrespect our disabilities or sex work, believes us when we’re hurt and listens when we say what we need, understands that we are the first and last authority on our own bodies and minds.

I believe that Greta’s ability to tweet #Aspiepower and frame her autism as a superpower is a product of brave-ass autistic women and nonbinary people who have been speaking about our lives and demanding an end to the ableist violence of a world that wants us ashamed and self-hating rather than proudly ourselves and able to access housing, meaningful work (or the right not to work), safety from police murder and medical violence ­­– and love, respect and community, as we are.

Many disabled people noted that the pandemic made for a “cripping of the world” — where for perhaps the first time in a while, the world, gripped by a global pandemic, dwelled in disabled reality. Remember how, for a minute, so many forms of access disabled people had long fought for were here because abled people needed them? Remember virtual work, pandemic pay for frontline workers, online school, online events with captioning and ASL, teaching people how to freaking wash their hands and stay home when they were sick, the ability to reschedule an appointment or a plane ticket when you got sick and not get yelled at or charged a fee, and immunocompromised shopping hours? These waves of access, mixed with mass resistance in the streets and at home against anti-Black, white supremacist violence, made for a powerful-ass two years. If that kind of mass access, resistance and mutual aid could happen, revolutionary change could happen too. The state wants us to forget that.

disability justice asserts that ableism helps make racism, christian supremacy, sexism, and queerand transphobia possible, and that all those systems of oppression are locked up tight. It insists that we organize from our sick, disabled, “brokenbeautiful” (as Alexis Pauline Gumbs puts it) bodies’ wisdom, need, and desire. It means looking at how Indigenous and Black and brown traditions value sick and disabled folks (not as magical cripples but as people of difference whose bodyspirits have valuable smarts), at how in BIPOC communities being sick or disabled can just be “life,” and also at how sick and disabled BIPOC are criminalized. It means asserting a vision of liberation in which destroying ableism is part of social justice. It means the hotness, smarts, and value of our sick and disabled bodies. It means we are not left behind; we are beloved, kindred, needed.

We have ancestral shame to heal. We have disabled lineages to honor. Let’s get to it.

A Disability Justice framework understands that all bodies are unique and essential, that all bodies have strengths and needs that must be met.

If movements got it together about ableism, there is so much we could win—movement spaces where elders, parents, and sick and disabled folks (a huge amount of the planet) could be present—strength in numbers! We could create movement spaces where people don’t “age out” of being able to be involved after turning forty or feel ashamed of admitting any disability, Crazyness, or chronic illness. We could create visions of revolutionary futures that don’t replicate eugenics—where disabled people exist and are thriving, not, as often happens in abled revolutionary imaginations, revolutionary futures where winning the rev means we don’t exist anymore because everyone has health care.

Writing from bed is a time-honored disabled way of being an activist and a cultural worker. It's one the mainstream doesn't often acknowledge but whose lineage stretches from Frida Kahlo painting in bed to Grace Lee Boggs writing in her wheelchair at age 98.

A lot of people have had a brush with what it’s like to live a disabled life these last two years, and a lot of them want to forget it as quickly as possible. They’d rather expose themselves to all kinds of harm than continue to be disabled like us — mask, discuss risk, stay home, pass public policies for the safety of all.

Mainstream ideas of “healing” deeply believe in ableist ideas that you’re either sick or well, fixed or broken, and that nobody would want to be in a disabled or sick or mad bodymind. Unsurprisingly and unfortunately, these ableist ideas often carry over into healing spaces that call themselves “alternative” or “liberatory.” The healing may be acupuncture and herbs, not pills and surgery, but assumptions in both places abound that disabled and sick folks are sad people longing to be “normal,” that cure is always the goal, and that disabled people are objects who have no knowledge of our bodies. And deep in both the medical-industrial complex and “alternative” forms of healing that have not confronted their ableism is the idea that disabled people can’t be healers.

People like to say survivors of sexual violence make up false memories. But it’s far more common for people who perpetuate abuse to make up a false reality where they did nothing wrong.

I don’t want to be fixed, if being fixed means being bleached of memory, untaught by what I have learned through this miracle of surviving. My survivorhood is not an individual problem. I want the communion of all of us who have survived, and the knowledge. (“Not Over It, Not Fixed, and Living a Life Worth Living: Towards an Anti-Ableist Vision of Survivorhood”)

The problem of surviving climate change as disabled people is not an individual problem, and because of this, there is no individual solution that will be enough to save us. Life as the only crip who survives may not be worth living.
In the immortal words of Sins Invalid, as disabled people, we are committed to a politic and practice of "we move together, with no one left behind." When I read those words for the first time, and since, I know that they are not a simple description of reality. There are plenty of us who have been abandoned to die, who have been left behind. But we know that as disabled people, we are some of the only ones of us who slow down and move at the pace of the slowest of us, call the nursing home over and over demanding to know if someone is OK, sit in the hospital ward letting the staff know people care about our friend who is sick. That phrase / those words, are an assertion and a challenge, to disabled and abled people alike. What strategies come to us at the slow back end of the march? The place where we leave no one to die?
As disability justice folks, we're gonna figure out the answers to surviving climate change together, with all the disabled ingenuity and creativity we've shown for our whole entire lives. We already are. We will not leave our people behind, and not slowly die with our disabled roots ripped out in strange soil.

Inclusion without power or leadership is tokenism. (p. 127)