Top 15 Leah Lakshmi Piepzna-Samarasinha Quotes

For years awaiting this apocalypse, I have worried that as sick and disabled people, we will be the ones abandoned when our cities flood. But I am dreaming the biggest disabled dream of my life—dreaming not just of a revolutionary movement in which we are not abandoned but of a movement in which we lead the way. With all of our crazy, adaptive-deviced, loving kinship and commitment to each other, we will leave no one behind as we roll, limp, stim, sign, and move in a million ways towards cocreating the decolonial living future. I am dreaming like my life depends on it. Because it does.

If movements got it together about ableism, there is so much we could win—movement spaces where elders, parents, and sick and disabled folks (a huge amount of the planet) could be present—strength in numbers! We could create movement spaces where people don’t “age out” of being able to be involved after turning forty or feel ashamed of admitting any disability, Crazyness, or chronic illness. We could create visions of revolutionary futures that don’t replicate eugenics—where disabled people exist and are thriving, not, as often happens in abled revolutionary imaginations, revolutionary futures where winning the rev means we don’t exist anymore because everyone has health care.

We have ancestral shame to heal. We have disabled lineages to honor. Let’s get to it.

I want abled people to get it together in 2018. Stop forgetting about disability and access. Read some of the many brilliant, made-by-disabled-people access guides out there. Normalize access and disability. Learn about disabled cultures and histories. Look at the histories of disability in your own family and communities. Ask how you are fighting ableism in every campaign you do. Don't forget about us. Realize you are or will be us.

Inclusion without power or leadership is tokenism. (p. 127)

You wanna know how you'll know if you're doing disability justice? You'll know you're doing it because people will show up late, someone will vomit, someone will have a panic attack, and nothing will happen on time because the ramp is broken on the supposedly "accessible" building. You won't meet your benchmarks on time, or ever. We won't be grateful to be included; we will want to set the agenda. And what our leadership looks like may include long sick or crazy leaves, being nuts in public, or needing to empty an ostomy bag and being on Vicodin at work. It is slow. It's people even the most social justice-minded abled folks stare at or get freaked out by. It looks like what many mainstream abled people have been taught to think of as failure. (p. 124)

It’s not about self-care—it’s about collective care. Collective care means shifting our organizations to be ones where people feel fine if they get sick, cry, have needs, start late because the bus broke down, move slower, ones where there’s food at meetings, people work from home—and these aren’t things we apologize for. It is the way we do the work, which centers disabled-femme-of-color ways of being in the world, where many of us have often worked from our sickbeds, our kid beds, or our too-crazy-to-go-out-today beds. Where we actually care for each other and don’t leave each other behind. Which is what we started with, right?

Mainstream ideas of “healing” deeply believe in ableist ideas that you’re either sick or well, fixed or broken, and that nobody would want to be in a disabled or sick or mad bodymind. Unsurprisingly and unfortunately, these ableist ideas often carry over into healing spaces that call themselves “alternative” or “liberatory.” The healing may be acupuncture and herbs, not pills and surgery, but assumptions in both places abound that disabled and sick folks are sad people longing to be “normal,” that cure is always the goal, and that disabled people are objects who have no knowledge of our bodies. And deep in both the medical-industrial complex and “alternative” forms of healing that have not confronted their ableism is the idea that disabled people can’t be healers.

Able-bodied practitioners without an anti-ableist analysis—including Reiki providers and anti-oppression therapists—often see us as objects of disgust, fascination, and/or inspiration porn. Mostly, these practitioners dismiss our lived expertise about our bodyminds and their needs, or on the flip side, they tell us we’re “not really disabled!” when we insist on the realities of our lives. This carries over into organizing, where, even in HJ spaces, often when the crips aren’t there, there’s no access info and no accessibility.

Most sick and disabled people I know approach healing wanting specific things—less pain, less anxiety, more flexibility—but not usually to become able-bodied. And many of us don’t feel automatically comfortable going to healing spaces at all because of our histories of being seen as freaks, scrutinized, infantilized, patronized with “What happened?” prayed over, and asked, “Have you tried acupuncture?” and a million other “miracle cures.”

It doesn’t have to be either healing or organizing: it’s both. Someone asked me at a talk I was giving at Portland State University’s Take Back the Night how we choose between healing and activism. I tried to tell them that healing justice is not a spa vacation where we recover from organizing and then throw ourselves back into the grind. To me, it means a fundamental—and anti-ableist—shift in how we think of movement organizing work to think of it as a place where building in many pauses, where building in healing, where building in space for grief and trauma to be held makes the movements more flexible and longer lasting.

Everyone I know longs for healing. It’s just hard to get. The good kind of healing: healing that is affordable, has childcare and no stairs, doesn’t misgender us or disrespect our disabilities or sex work, believes us when we’re hurt and listens when we say what we need, understands that we are the first and last authority on our own bodies and minds.

The making of disability justice lives in the realm of thinking and talking and knowledge making, in art and sky. But it also lives in how to rent an accessible porta potty for an accessible-except-the-bathroom event space, how to mix coconut oil and aloe to make a fragrance-free hair lotion that works for curly and kinky BIPOC hair, how to learn to care for each other when everyone is sick, tired, crazy, and brilliant. And neither is possible without the other.

our focus is less on civil rights legislation as the only solution to ableism and more on a vision of liberation that understands that the state was built on racist, colonialist ableism and will not save us, because it was created to kill us.

A Disability Justice framework understands that all bodies are unique and essential, that all bodies have strengths and needs that must be met.